DYSTONIA: BLOGMAS #7 MORE POWER FAILURES

Sorry these blogs today have been very short, we have had no power once again tonight till late as the generators stopped working before for around 5 hours which once again put everywhere in complete darkness.

It's back as I type this at 11pm and fingers crossed it will stay on now till they get the sub station back up and running.

The devastation around Lancaster is unbelievable, I am still in shock after driving threw the city centre this morning and to see where the water has actually has come up to is amazing it has just wiped right threw the middle of town.

The good news is the bridges have both opened now so at least the traffic will be a little easier as you can get in and out of Lancaster easier than before. The worry is towards the end of the week the rain is set to come in again and there is weather warnings in place.

My Dystonia is not the best at the moment as I have not slept much since Friday night as we have been up most of the time. Dystonia is very hard to cope with when you have little sleep you become very edgy and aggravated at the slightest thing and it's not nice for Hollie sometimes as I get into little moods but I don't mean to. I am planning on going to sleep the minute this is posted and getting a better nights sleep (fingers crossed)

I will be back up writing better and longer Blogs hopefully tomorrow.

Take care and lets hope all the flood victims get sorted ASAP!

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DYSTONIA: BLOGMAS #6 LANCASTER NO POWER AND FLOODED

Sorry I couldn't post a blog yesterday, I live in Lancaster in the UK, Some of you will have heard and seen reports on the TV and radio about our area being flooded.

Saturday day time it did not stop raining for a single second, it wasn't just the rain what was causing problems it was the wind as well they said on the radio we was having up to 80MPH winds and outside was very very wet!

It was very bad outside but we was safe and warm inside the house till around 11pm on Saturday night when all of a sudden all the electric went off and that was it till this morning, the bridges to Lancaster were both closed as a container had floated from somewhere and smashed into the bridges and caused damage so the traffic was just mayhem! 

About midnight that same night we discovered a leak in the ceiling in the hall way, it was leaking in as the rain was battering the front of the house that was it was coming threw the ceiling, we rushed to try and mop it up and cause to further damage but on Sunday morning we had to take the ceiling down and the damage had been done! 

Being without power for so long was also worrying for my Boston charger which charges my Deep Brain Stimulator up, as I type this it is still charging up and I hope that it has not been damaged as it has not been on charge for a full 36 hours.

Luckily they have brought generators in from around the country to get the power back on as on Sunday morning they had said it might not have been on till Wednesday which would have been even more of a nightmare. 

This weekend will always be remembered as one of the worst ever around these parts of the country and my thoughts go out to all the people who have lost their possessions on their homes as part of the floods.

I will be uploading another Blog later today as this one I am counting as yesterdays 

DYSTONIA: BLOGMAS #5 SLEEP IS HARD

Welcome to Blogmas day 5 I hope you enjoying reading theses daily Blogs:

DAY 5 SLEEP:

I am finding my sleeping patten a bit strange at the moment, I am not going to sleep till around 1am and getting up around 7am so I am getting around 6 hours sleep a night, I know this isn't enough but I just can't get comfy or I get things running threw my mind and start thinking about things.

Other night I fell asleep at 8pm and had a couple of hours woke up for an hour then went back to sleep all in all I had about 11/12 hours sleep and I still felt the same the next day. The way my body is in spasm all the time at the moment it's so hard to get calm and comfy and when you wake up the next morning it feels like you have had a full work out.

When I wake up my body feel's so tired I can hardly move my legs some mornings I am like an old machine which needs a few minutes to get started in the morning, I get frustrated how I am at the moment as I dread waking up and having to deal with the tired legs and all the ache's and pains. Once you get going you get a bit more relaxed but then suddenly something happens and you get a big twinge or a spasm and you're back to square one and you're in pain and aching again.

I am not able to do much at the moment which is frustrating and I am trying to keep busy around the house as I am not going out much as I get so tired when I do most things, There is a red weather warning around the north west where we live today and the weather is awful today the wind and rain is terrible so today is just a day to film a few Fifa video's and chill out as I don't think it's stopped raining in a week or so.

I am enjoying have a little write everyday during Blogmas and I have many more little blogs to come

DYSTONIA: BLOGMAS #4 FOLLOWING IN MY DAD'S FOOTSTEPS

Welcome to day 4 of Blogmas I hope you're enjoying reading my post's.

My dad has always worked very hard and I have always respected the work he has done, I have always asked him about the jobs he's on and what he is doing the next day, He has always worked in Civil Engineering and when I was growing up every chance I could get I was in the van with him and off to work with him.

I used to love seeing all the machines and seeing him at work, he's never missed a day of work and I've always respected him for that, I have always wanted to work with him and beat his achievements but I know I will never be able to work in that line of work as my condition, it makes me a little sad but i'll always have the memories of going to work as a child with my dad and seeing everything, even now I look at his emails about the drawings of jobs and his projects of jobs.

My dad took me everywhere as a child even when I was in a wheelchair he used to always put it in the back of the van and take me everywhere he went, I never really had the chance to go out anywhere but when my dad offered the chance to go to his work or just out to fill the van up I used to jump at the chance.

I have learnt a lot from my dad about the railway and Building works not that I will ever be able to do any of the work he has done but I have the memories of great days out as a child which I thoroughly enjoyed.

Brilliant memories and brilliant times as a child.

HAVE A GREAT DAY FOR WHO EVER READS THIS.

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DYSTONIA: BLOGMAS #3 ANXIETY AT CHRISTMAS

Having any condition is difficult I can only write about my condition which is Dystonia, I have Generalised Dystonia which effects several parts of my body, my left arm does not work that well and I struggle with my grip whilst holding or carrying anything. My right arm is about 50% ok haha I relay on it for everything as I look at myself with just one arm.

This is a struggled coming unto christmas as more people go into shops and rush around which means more stress when packing bags in supermarkets or shops, the more you think about it the more you start to shake and get into body spasm's and christmas is just a nightmare for shopping.

I am not the greatest fan of christmas as people over the last few years people have forgotten about the spirit of Christmas and are just obsessed about buying things and getting the perfect present, this causes mayhem on the streets and in shops as people go crazy to get to the tills and get the best things.

I buy most things online mostly on Amazon, I have prime delivery and its just a blessing at this time of year as you can order something at 6pm and you have it the next day straight to your door which means you don't have to go to the shops and wait in queues and worry about all the haters what stare and look at you whilst you walk.

Supermarket shopping is difficult at the best of times but at this time of year my Anxieties go through the roof! You can buy anything within the big supermarkets now so people just go there and fill their trolley's with pure crap this time of year! You have probably guessed by now I hate this time of year not because of christmas but the people who stress out and just go absolute mental over shopping.

My advice is to stay at home and shop online and the next day let it arrive at your door and you don't have to feel anxious :)

DYSTONIA: BLOGMAS #2 HAIRCUTS

Haircuts:

Haircuts might seem just the normal thing in life but when you have a condition like Dystonia it makes a simple trim into a dreaded trim.

I have always struggled with getting my hair cut for as long as I can remember, when I was very young I had someone come round to my home to cut my hair as we all thought it would make the process a lot easier let me tell you it didn't! Her name was Louise and she's gone onto opening her own shop and is doing very well she still recognises me if I ever see her and says hi. Sometimes I used to have to get into a headlock to get my haircut and after the cut my body was exhausted and it took hours for my body to come out of spasm. My next barber was Charlie a wonderful man with lots of patience for my spasms he had Skerton barbers and my dad had been going there for a while before he started taking me, it was very hard sitting in a barbers chair every time it moved another shake came on, it took almost twice as long as anyone else who had theirs cut, we always made sure we was there for around 15 minutes before it opened to try and get first in, on some occasions sometimes there was already a couple of people waiting outside, when that was the case my heart just dropped I could feel my self startling to get spasm and starting to sweat, only in the last couple of years have I realised that these were in fact Anxiety attacks but at that age I had never heard of such things, this carried on for about 6 years every couple of months the dreaded hair cut and after a week at school and my body just shattered I just couldn't handle it. When I was around 11/12 my mum started cutting it but by that stage I had my deep brain stimulation inserted and now my head had scars and wires and bumps on it, she did her best but the patience was never there like most of the time.

I only started to get more relaxed when Hollie came into my life and she started to cut my hair and wow she does a fantastic job she keeps as cool as a cucumber whilst I move around and Moan about this scar and that wire she just take no notice and gets the job done and she really make getting the simple task of getting my hair cut actually simple again!

THANK YOU FOR READING AND FOLLOW ME ON TWITTER @MYROYLELIFE

DYSTONIA: BLOGMAS #1 STILL SHAKING

Sorry I have not blogged in a very long time, to be honest I have been in a defeatist attitude for a while, My condition is getting worse every week and I still have no help from Salford Royal and they have still not written or rang about an appointment I have rang and rang and I can't get any response.

In the last few months there has been a few changes and I will be blogging every day up till Christmas and I hope everyone who reads these blogs are not getting stressed about the build up to Christmas.

My back is in a lot of pain every single day at the moment, I just can't seem to get comfy in any position, I am sleeping a lot then sometimes I can't sleep at all haha.

I will be writing more detailed blogs other the next 24 days but I thought I would just ease back into it by saying hello.